SUPPORTWe provide support through regular meetings, motivational talks, peer counselling, limited financial assistance and personal development initiatives.
Support Club Meetings
Our quarterly meetings provide support through educational talks and the sharing of experiences and coping strategies. The SCSFJ facilitates the formation of friendships that have been an important source of social support during times of illness and other life challenges.
One of our recent meetings in 2015 featured Dr. Kai Morgan, a clinical psychologist who addressed the issue of psychological health and coping with low self-esteem, anxiety and depression. With the requisite resources and funding, it is our hope to make these meetings a monthly event.
Assistance with Medical Expenses
Many sickle cell disease (SCD) patients are living in poverty, as their illness often forces them out of school and leaves them lacking the skills or formal qualifications to gain meaningful employment. For those patients who find themselves in this position, it is a challenge to pay their medical bills.
The Foundation spends over J$150,000 a year assisting patients who cannot afford medication, blood tests and other medical procedures. The amount spent cannot accommodate the requirements of all the patients in need, but it is the aim of the SCSFJ to strengthen its outreach in this area through increased fundraising activities and soliciting more donations. The lobbying efforts of the SCSFJ has resulted in the National Health Fund (NHF) adding medications freqently used by SCD patients to its individual benefits programme.
Over the course of a three-year period, the Foundation operated a remedial education programme in Mathematics and English for patients who suffered academic setbacks due to repeated bouts of illness. Restarting such programme is contingent on the availability of volunteer teachers and the necessary funding.
Assistance With Starting A Micro-Enterprise
Since its inception, the Foundation has helped several SCD patients to start small businesses in areas such as photography, baking and poultry farming.