ABOUT US

The Sickle Cell Support Foundation of Jamaica (SCSFJ) - Sharing, Caring, Empowering...
Brief History

In October 1992, sickle cell patients Camille Daley and Morette Wright made the decision to start the Sickle Cell Support Club of Jamaica. After over two decades of providing support to persons with sickle cell disease, lobbying for improved benefits and raising public awareness, this non-profit, voluntary organisation was relaunched as the Sickle Cell Support Foundation of Jamaica (SCSFJ) in April 2015.

Mission

Our mission is to provide support to patients and their families through a vibrant organization.  We also seek to raise public awareness of sickle cell disorders and create an enabling environment within which individuals with sickle cell disease can flourish and realize their true potential.

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Objectives
  • Provide social and emotional support to patients and families affected by sickle cell disease and share information and coping strategies to empower individuals to manage the disorder effectively.
  • Heighten awareness of the various sickle cell disorders which exist through public education programs and to dispel the many prevailing myths and misconceptions which surround the illness.
  • Act as a public advocate on behalf of individuals affected by sickle cell disease.
  • Foster and support personal development and self-actualization of sickle cell patients with assistance through grants for remedial education, skills training and micro-entrepreneurial ventures.
  • Provide limited assistance with medical expenses to needy sickle cell patients.
  • Establish links and exchange information, ideas and strategies with regional and international sickle cell organisations.

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Achievements
  • Lobbying the Ministry of Health to restart neo-natal screening of babies and adding Sickle Cell Disease (SCD) to National Health Fund (NHF) coverage.
  • Publishing an educational “Get the Facts” brochure on Sickle Cell Disease and a “Teachers’ Guide to Sickle Cell Disease”.
  • Staging the annual Sickle Cell Awareness Week.
  • Recipient of CIBC First Caribbean Unsung Hero Award 2010 (Camille Daley, SCSFJ Co-founder)
  • Successful Sweater Drive to assist underprivileged patients during the cold months.
  • The establishment of a Sickle Cell Hip Replacement Fund and an account at the Blood Bank.
Newborn screening for sickle cell disease has been recommended as a method of decreasing patient mortality.

Newborn screening for sickle cell disease has been recommended as a method of decreasing patient mortality.

Lobbying Efforts

The SCSFJ is committed to influencing change through lobbying efforts that are geared towards improving the quality of life of persons with sickle cell disease (SCD). Some of our successful campaigns to date include:

 

  • Getting the Ministry of Health to start neo-natal screening of all babies islandwide in 1993
  • The commencement of the pilot programme for the national cord-blood screening programme at the Sickle Cell Unit in 1996
  • Convincing the Ministry of Health to add sickle cell disease (SCD) to the individual benefits programme of the National Health Fund (NHF) in 2015.
Future Plans
  • Revising and reprinting our “Teachers’ Guide to Sickle Cell Disease” for distribution to schools, along with the hosting of sensitization workshops for teachers.
  • Developing a public awareness campaign using the electronic and print media to raise the profile of the illness and increase the testing for the sickle cell trait to reduce the incidence of the disease.
  • Assisting more patients with education and skills training.
  • Supporting the establishment of branches of the SCSFJ islandwide.

Workshop

MEET OUR TEAM

Camille Daley

Camille Daley

President & Co-founder

Ms. Daley’s primary focus are the areas of Policy and Advocacy.

Morette Wright

Morette Wright

Vice President & Co-founder

Ms. Wright’s portfolio includes Training and Personal Development.

Natalie Roach

Natalie Roach

Vice President

Ms. Roach has direct responsibility for Marketing and Public Relations.

Alicia Turner

Alicia Turner

Vice President

The areas of Support and Membership fall under the purview of Ms. Turner.

Gina Hargitay

Gina Hargitay

Foundation Ambassador

Gina Hargitay, Miss Jamaica World 2013, is the SCSFJ’s Ambassador.

Jodinel Blackwin

Jodinel Blackwin

Vice President

Ms. Blackwin is in charge of Public Education.

Toni Passely

Toni Passely

Secretary

In addition to providing secretarial support, Ms. Passely also serves as Fundraising Coordinator.

Richard Burton

Richard Burton

Vice President

As Treasurer, Mr. Burton has oversight of the SCSFJ’s finances.